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Birth Defects Prevention & Surveillance System AB 185

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The proposed legislation will work to reduce program obstacles thereby resulting in a more comprehensive surveillance system. The current system prevents linkage of the Birth Defects Registry with other health-related databases (e.g., birth records, hospital discharge data). For a passive surveillance system, such linkage is necessary to ensure complete data and avoid duplicate reporting. The proposed changes will correct these deficiencies, in part by allowing parents the opportunity to opt out of the inclusion of identifying data in the Birth Defects Registry rather than insisting on an active consent for inclusion.

AB 185

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